Friday, January 9, 2009
Where are we??
I was somewhat stuck on how to proceed because Hayden has such complex dietary requirements...follow the ADA diet, add fiber, give him plenty of good fats....on and on....that who else can benefit from those types of recipes???
And along with that, there is the frustration of "dealing" with this type of illness or condition because not many people can relate. Hayden's condition is the result of a surgery...a type of surgery that we were told was necessary at the time to control his reflux. Now, who knows?? Have you ever heard of "Post-Prandial Hypoglycemia, Secondary to Dumping Syndrome"?? Probably not. And if you have it is probably the result of Gastric Bypass Surgery in an adult. Not
I try to keep everything "Cheery" and try to only share my frustrations with my husband or at times my favorite Doctor. I love her... I have a blog that is fun! I share fun projects that I am working on, great thrift store finds, and wacky stories of my childhood....which I have come to determine was not "normal"...but in a good way! Quite frankly it is not in my character to share all the info about Hayden, it is too confusing for most to understand and then they just think we are crazy. It is confusing for us...and sometimes we think we are crazy!
Today however I am particularly frustrated because Hayden has been having chronic stomach pain for weeks...not every day, maybe two, three or four days a week...every week! It is happening enough that it slows him down, and if you know Hayden you know that he isn't the "slow down" type of kid. He feels like he is passing a kidney stone - again - and to top it off...he is trying to exert "control" over his body and is fighting me tooth and nail about the basics. On every detail!
Maybe I am going to be talking to myself, maybe I will just be keeping a record of what each day brings and I can reflect on it another day. But whichever it is, this is going to be a place for me record those thoughts and the regular changes to his medical needs. No whining, or complaining, just straight talking.
So here we are....a Mom and Dad who tried to do the best thing for their kid, and a kid who has been forever altered because of a "necessary" surgery that now-a-days isn't so necessary? Real people dealing with the real BS of the medical world, dealing with the real life effects that chronic illness brings to the family dynamic, and of course lets not forget the ever popular comments..."Now,.... what is wrong with him??" with the perplexed confused look on their face. And of course that is only what they are willing to say to our face, we have heard some of the things that they say behind our back...and they should be ashamed.
If your friend, family or other, I hope that this will keep you up to date. And where are we today?? We are 10 days underway after taking the NG tube out (the feeding tube that runs through his nose into his belly). We are trying to find out if having the tube helps with the dumping (the intense/immediate need to poop right after eating...within 15 minutes of starting to eat). Having the tube put on weight really fast in the first 4 weeks and then the second 8 weeks not much....so a little frustration there. Plus it didn't help with the dumping, only helped to get some guaranteed nutrition.
Sunday, November 16, 2008
Superman Smells Like a Sugar Cookie!
I am not going to run out and buy a candle or anything...but I will make the best of it while we have to.
In other news, the real benefit to go along with the sweet smell is that he is gaining weight and having much fewer Hypoglycemic lows now that he has been having overnight feeds! Almost 10 pounds since July....that is awesome!!! And we haven't had one instance of "lows" in the past two months...THAT is really awesome!
We are going to experiment this week with a Reduced/Sugar-Free Pumpkin Pie. Wish me luck! This and Apple are two of his favorites so I am going to attempt....I am thinking that apple would be much easier.
Looking for a Quick-Fix for a Sweet Treat?? This is a simple little snack that always hits the spot. Hayden prefers his with a little Peanut Butter (which adds more protein..which is good for him) THIS IS NOT ONE OF MY "SUGAR-FREE" TREATS! BUT - WITH ONLY 9 GRAMS OF SUGAR/CARBS IN THE FLUFF, YOU GET BIG SWEET IN A LITTLE AMOUNT!
No-Burn S'Mores
Graham Crackers (whatever variety you like)
Marshmallow Fluff
Sugar Free Chocolate Syrup
Lay your Graham Crackers out in single layers.
Spread a small (or large if you choose) amount of Fluff on.
Drizzle small amount of Chocolate Syrup over
We like them open-face...you can close them up for a more authentic S'more effect.
Hayden also likes to add Peanut Butter to his!
Monday, October 20, 2008
We Cheated!!


We did make some really yummy Muffins the other morning, I will post the recipe for them. They were ULTRA healthy, full of fiber, yogurt, real fruit flavors and barely any sugar! Good stuff!!!
Thursday, March 13, 2008
Yummy Purple Monster's!!
- 1/2 C. Organic Agave Sweetener (if you choose to use regular sugar use only 1C to keep the sugar down)
- 1 C. Whole Wheat Pasty Flour
- 3/4 White Cake flour (you can all whole wheat flour if you want)
- 3/4 C. Hershey's cocoa
- 1 1/2 tsp. baking powder
- 1 1/2 tsp. baking soda
- 1 tsp salt
- 2 eggs
- 1 C. milk
- 1/2 C. Purple Power****see below for how to make this!
- 2 tsp. Vanilla extract
- 1 C. Boiling Water
Combine all your dry ingredients in a large bowl, add eggs, milk, vanilla, purple power & beat on Medium speed for 2 minutes. Slowly add the Agave sweetener while beating the liquid ingredients in. Now stir in the boiling water. Add to your cupcake liners. Bake for 20 minutes at 325. IF you choose to use regular sugar, change your oven temp to 350 and bake for 25 minutes.
- Your Purple Power Potion!! I did NOT dream this up, I found it in a great magazine and incorporated into this recipe. It was really easy! Easier than I thought when I first read it....the food processor brings back nightmares of having to make my own baby food for the fourth little beauty!

- 3 C. Raw baby spinach leaves (organic)
- 1 1/2 C. Fresh or unsweetened frozen blueberries
- 1 tsp. lemon juice
- 2-4 Tbs. water
Boil the spinach for two minutes (in water...it took me a minute on this one??). Drain the spinach and add it to a food processor with the blueberries and lemon juice. Add the water as needed to thin it out. **I actually used a combination of blueberries/raspberries and blackberries..too seedy!!**
NOW...I must confess that I totally baled on the icing and used a "store bought" reduced sugar icing. It was very yummy and much less sugar. My guy doesn't even like the icing any more..makes him sick!! YUCK....So we sometimes use a sprinkle of powdered sugar in place, adds just enough "sweet" to the cupcake.
We decorated them with fun Purple Icing, and those cute little toppers my daughter made "On the fly"...no pun intended!! When she saw me taking pictures of the food, her craft ADD kicked in!! Off to the craft room she went and came back down with the punch in hand...
These cupcakes are FILLED with Fiber and pretty nutritious for being a dessert! Give them a try!
Friday, March 7, 2008
Who is hungry??
As a mom, it is always a challenge to feed our kids healthy foods that they will actually eat! I am hoping that this blog will give you a few new treats to add to your recipe book.
I make no claims to be a Nutritionist, or Dietary expert. I have NO medical training other than the "Mommy Badge" that I have earned through 4 kids over the past 12 years.
